Communication is KeyMore than 24 million people in the United States have an autoimmune disease, according to the NIH. And even more experience chronic...reactionscomments
Practical Ways to Overcome Depression While Beating LupusWhat the hell? Helpless... Hopeless... Sometimes, I’m just sick of being the adult in this lupus relationship. I don’t know if I’m...reactions5comments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am...reactions3comments
Give Me My Life Back, LupusI want my old life back. Yes, I want my old life back. I want to be able to work and come...reactions2comments
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living...reactionscomments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each...reactions20comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the...reactionscomments
Patient RightsWhen someone goes to the doctor, they believe they have the utmost respect from their doctors and they really do not. Imagine...reactions1comment
5 R’s of Lupus to Get Through a Rough DayEvery day with lupus can present some difficult moments. One day you are on top of the world. The next day you are...reactions8comments
When Is It Time To Change Rheumatologists?At the end of 2017, I realized that I needed to change my rheumatologist. The time leading up to that decision leave...reactionscomments
Grief and Chronic IllnessThe year 2020 was not a good year for me at all. Grief was everywhere and everyone felt it. I was pregnant...reactions2comments
What Are Mornings and Afternoons Like With Lupus?I start to register pain as soon as I wake up in the morning. It starts a bit slow, thanks to the...reactions3comments
My COVID Vaccine Experience, Part 1After quarantining for 9 months, I was excited when immunocompromised people were scheduled to receive the COVID-19 vaccine in my state. As...reactions1comment
Ultimate Lupus Survival GuideHaving lupus is very challenging. In fact, it can be downright overwhelming and difficult to handle day-to-day. The main thing that you...reactions1comment
Ethical Issues"Why won't you take my health insurance?" This is a question almost every patient has. Why can’t I see this wonderful doctor...reactions2comments
Getting Support For Lupus While Going to CollegeI know that majoring in marine biology seems like a cliché, but I had a serious interest in the subject matter. As...reactionscomments
What A World Built For Lupus Patients Would Look LikeAs a sick person in a world built for the healthy and able-bodied, I’ve often struggled to keep up with my peers...reactions2comments
My COVID-19 Vaccine And How The First Dose WentPlease ask your medical professional if the vaccine is right for you. The following is my experience under the care of my...reactions6comments
Community Views: Tips for Those Newly Diagnosed With LupusReceiving a lupus diagnosis often leads to a big question: “Now what?” It is true that learning what life with lupus looks...reactions1comment
My Experience On BenlystaSo, I started Benlysta a few months back and I wanted to see how it does with my body. Again, my doctor...reactionscomments
