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Read conversations, start a discussion, and connect with others about Lupus.

Active 6 days ago

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Active 7 days ago

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Active 7 days ago

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

Active 7 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 7 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

How to deal with the flushes of heat and pain on each side of my head?

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

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